Facial Difference on the Net
Search Barnes and Noble for Plastic Surgery and Cosmetic Surgery
- Visit Barnes and Noble for cleft lip and cleft palate
- Visit Barnes and Noble for facial difference
- Visit Barnes and Noble - living with facial difference
| Ability OnLine www.ablelink.org E-mail: craig.mabee@ablelink.org Tel: (416) 650-6207 Fax: (416) 650-5073 |
"Ability OnLine is an electronic mail system that connects young people with disabilities or chronic illness to disabled and non-disabled peers and mentors. This easy-to-use network gives "wings" to thousands of children and adolescents by removing the social barriers that can come with having a disability and illness, and by providing opportunities to form friendships, build self-confidence, exchange information, and share hope and encouragement through E-mail messages." |
| About Face (800) 665-3223 http://www.interlog.com/~abtface |
AboutFace is an international organization providing emotional support and information to individuals who have facial difference and their families. |
| Apert Support and Information Network E-mail: apertnet@ix.netcom.com Tel & Fax: (916) 961-1092 |
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| Arhinia and other craniofacial anomalies | Arhinia is the absence of all or part of the nose. Arhinia is also referred to as nasal agenesis or nasal atresia. It is a rare craniofacial anomaly. This page mainly focuses on congenital arhinia. |
| Association for the Care of Children's Health
(ACCH) www.wsd.com/acch.org E-mail: acch@clark.net Tel: (301) 654-6549 Fax: (301) 986-4553 |
The Association for the Care of Children's Health (ACCH) is a multidisciplinary membership organization of healthcare providers, family members, facility designers, teachers, child life specialists, chaplains, hospitals, and other individuals and organizations committed to improving the quality of care for children and their families through education, dissemination of resources, research, and advocacy. |
| Canadian Organization for Rare Disorders Tel: (403) 345-3948 Fax: (403) 345-4544 |
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| Changing Faces E-mail: info@faces.demon.co.uk Tel: (0171) 706-4232 Fax: (0171) 706-4234 |
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| Cleft Palate Foundation (800) 24-CLEFT |
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| Disfigurement Guidance Center www.timewarp.demon.co.uk/index.html |
Addresses and links |
| FACES (800) 332-2373 Fax: (423) 267-3124 |
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| Foundation for Nager Miller Syndromes (800) 507-FNMS (3667) Fax: (847) 724-6449 |
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| Let's Face It Tel: (360) 676-7325 http://www.faceit.org/~letsfaceit/ |
For many individuals who have felt alone in the world, our support networks often represent the first opportunity to meet others who know how they feel. By sharing, caring, and supporting, we make a difference in each other's lives. |
| Let's Face It U.K. http://www.letsfaceit.force9.co.uk/ |
You are not alone.....with the fears and worries, regardless of why or how a face is disfigured We Understand... for we have been there and.. We survived !! |
| MOEBIUS SYNDROME FOUNDATION webasitehttp://www.ciaccess.com/moebius/ | "Moebius Syndrome is a rare disorder characterized by lifetime facial paralysis. People with Moebius Syndrome can't smile or frown, and they often can't blink or move their eyes from side to side." "The Moebius Syndrome Foundation is a nonprofit organization started by parents and people with Moebius Syndrome. We've come together to do what we can to fight back - by spreading the word among the medical and lay communities and by supporting research into the causes, treatments, and possible cures for Moebius Syndrome." |
| National Organization for Rare Disorders Inc. www.NORD-RDB.com/~orphan E-mail: orphan@NORD-RDB.com Tel: (800) 999-NORD Fax: (203) 746-6481 |
NORD is the only organization of its kind--a unique federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities. Thousands of affected individuals and their families--as well as support groups, health care and human service professionals, and advocates for people with rare disorders and disabilities--rely on NORD's assistance and leadership. |
| Neurofibromatosis Inc. http://members.gnn.com/NFINC/page1.htm Tel: (301) 577-8984 Fax: (301) 577-0016 |
Neurofibromatosis, Inc. Homepage Support and information for those with Neurfibromatosis, Transcripts, Information, Links, A Bulletin Board, And Much, Much More! |
| Operation Smile www.operationsmile.org Tel: (757) 635-0475 Fax: (757) 626-0368 |
Building trust and bridging cultures, Operation Smile's mission is to bring together health professionals with the public and private sectors to provide voluntary care for developing nations and in the United States. |
| The Oral Cancer Information Center www.oralcancer.org |
The Oral Health Education Foundation, Inc. (OHEF) is a public nonprofit foundation based in suburban Atlanta, GA, US with the goal of improving oral health through public and professional education. OHEF administers the National Oral Cancer Awareness Program (NOCAP), an ongoing program to inform both the public and health care professionals about oral cancer and related topics. |
| The Phoenix Society for Burn Survivors Inc. http://www.phoenix-society.org/ (800) 888-BURN Fax: (215) 946-4788 |
An international, non-profit self-help organization helping burn survivors and their families return to happy and productive lives following injury. |
| The Rombergs Connection http://www.geocities.com/HotSprings/1018/ |
We are a newly founded international support group for people whose lives are affected by Rombergs Syndrome. |
| Wide Smiles www.widesmiles.org E-mail: widesmiles@aol.com Tel. and Fax: (209) 942-2872 |
WIDE SMILES was formed to ensure that parents of cleft- affected children do not have to feel alone. We offer support, inspiration, information and networking for families everywhere who may be dealing with the challenges associated with clefting. |
